Only by the Grace of God that this is not my mother or your mother. Please check out what Overwhelmed by Joy has to say and then come back here to finish reading. This is a topic I have purposely not written about on my blog before. Today seemed like the right time to share.
Dementia is a disease that affects everyone close to the person and just when you think you have it figured out the game changes. There are no rules and nobody wins. You learn to take it one day at a time, except for the times you don’t. You learn to find humor so that you won’t cry, except for the times you do.
You spend your time waffling back and forth between feelings of guilt, inadequacy, frustration, fatigue, anger, worry. All of these emotions are rooted in the fact that you want to be anywhere but here, yet you can’t imagine not being here. You want to do what’s right, but sometimes you just want to walk away. Then you attack yourself for being selfish. Because you have your mind. You’ve only lost your life as you knew it and grieving what you have given up seems so small in comparison to watching your loved one give up so much more.
On a good day things seem almost normal and you can laugh and share memories, but in an instant that can change and you’re left wondering what you said wrong. You watch as your loved one walks away from you feeling like somehow you have let them down, even though you know you didn’t mean to. Then there are the times you engage and say things you later regret because you know they don’t really mean to shut you out.
You find yourself trying to figure out patterns and anticipate moods, only to realize that you are just twirling in circles and there are no answers. Only questions. Then you remember. He knows your pain. He suffered too. And He will be with you. You are reminded once again that “the joy of the Lord is your strength.” And you know that it is only by the mercies of God that the journey can be traveled with Grace.
Finding mercy in His Grace,